This my Child
- Length: 5:50
- Rating Average: 5.00 from 1 people
- View Count: 168' favoriteCount='1
- Author: Lisaandjami
Tags: Breann Chavez Disease Niemann-Pick
This is a poem written by my aunt Donna Maser in honor of our Daughter Breann Chavez. It captured the emotional struggle that my husband and I went through after our daughter was diognosised with Niemann-Pick Disease. It is dedicated to all families who are still in this fight. Sadly Breann...
Baseball Fans - Can You Forward This Video?
- Length: 4:7
- Rating Average: 4.00 from 3 people
- View Count: 941' favoriteCount='2
- Author: AddiCassiFund
Tags: Alzheimer's Baseball Batboy Brain Childhood Cure Eadie game Hope Injuries Inspiration Kevin Love Niemann-Pick No NPC Peninsula Pilots Type Virginia Wheelchair
An All American Boy Who Loved Baseball. Kevin's heroic battle against "Childhood Alzheimer's" (Niemann-Pick Type C) was an inspiration to everyone.
Niemann Pick Moms Cindy Parseghian & Andrea Marella on Today
- Length: 6:18
- Rating Average: n/a
- View Count: 9
- Author: VictoryParseghian
Tags: andrea ara foundation interview medical niemann niemann-pick nonprofit parseghian pick research show today type-c
Segment from the Today Show featuring Cindy Parseghian from the Ara Parseghian Medical Research Foundation and Andrea Marella talking about what it's like to be the mother of a child with Niemann Pick type c
Regis and Kelly talk on-air about Parseghian Foundation
- Length: 5:1
- Rating Average: n/a
- View Count: 98
- Author: VictoryParseghian
Tags: ara foundation interview kelly live medical niemann niemann-pick nonprofit parseghian pick regis research type-c
Segment from Live with Regis and Kelly when they talk about the Ara Parseghian Medical Research Foundation
From the Heart - Niemann-Pick Families share feelings (pt2)
- Length: 6:39
- Rating Average: n/a
- View Count: 20
- Author: VictoryParseghian
Tags: ara foundation from heart interview medical niemann niemann-pick nonprofit parseghian pick research share the type-c
Families of individuals who suffer from Niemann-Pick Type C (NPC) disease share their feelings and experiences.
From the Heart - Niemann-Pick Families share feelings (pt1)
- Length: 5:34
- Rating Average: n/a
- View Count: 46
- Author: VictoryParseghian
Tags: ara foundation from heart interview medical niemann niemann-pick nonprofit parseghian pick research the type-c
Families of individuals who suffer from Niemann-Pick Type C (NPC) disease share their feelings and experiences.
StemSave, Affordable way to Saving Cells for Life by saving children's teeth
- Length: 2:56
- Rating Average: 5.00 from 6 people
- View Count: 80
- Author: SavingStemCells
Tags: affordable alzheimer's baby brain cancer cell cells Chotkowski collecting diabetes disease dystrophy Greg heart leukemia muscular niemann-pick parkinson's preserving save saving stem stroke teeth trauma
Did you know that it is now possible for you to have a profound impact on the future health of someone you love?And you can do it with one simple tooth.We didn't store our childrens cord blood when they were born. Now, we have the opportunity to collect and preserve their stem cells and its much...
H&S INFO-SLIDE
- Length: 1:24
- Rating Average: 5.00 from 2 people
- View Count: 46' favoriteCount='1
- Author: Lysosomal
Tags: 64 adult alpha aspartylgucosaminuria battens beta cln ctsd cystinosis danon disease disorder enzyme epilepsy fabry farber fucosidosis galacttosialidosis gaucher gm1 gm2 hunter hurler infantile issc juvenile krabbe kufs lamy late leukodystrophy Lysosomal lysosome mannodosidosis maroteaux metachromatic morquio niemann northern onste organelle pick pompe pycnodysostosis sachs sailidosis salla sandhoff sanfilippo schindler sly syndrome tay tppi wolman
INFO OUT ABOUT LYSOSOMAL DISEASE.VISIT WWW.HIDEANDSEEK.ORGIT IS TME YOU KNOW!
The Many Faces of Lysosomal Disease #2
- Length: 3:25
- Rating Average: 5.00 from 1 people
- View Count: 221' favoriteCount='1
- Author: Lysosomal
Tags: 64 adult alpha aspartylgucosaminuria battens beta cln ctsd cystinosis danon disease disorder enzyme epilepsy fabry farber fucosidosis galacttosialidosis gaucher gm1 gm2 hunter hurler infantile issc juvenile krabbe kufs lamy late leukodystrophy Lysosomal lysosome mannodosidosis maroteaux metachromatic morquio niemann northern onste organelle pick pompe pycnodysostosis sachs sailidosis salla sandhoff sanfilippo schindler sly syndrome tay tppi wolman
LYSOSOMAL DISEASE IS KILLING OUR CHILDREN AND TAKING THE LIVES OF OTHERS.HELP US EDUCATE THE WORLD ABOUT LYSOSOMAL DISEASE.
Tribute by Notre Dame's Terry Hanratty to Hall of Fame Coach, Ara Parseghian
- Length: 9:56
- Rating Average: 5.00 from 2 people
- View Count: 2229' favoriteCount='2
- Author: OldTownIrish7
Tags: Ara Clements Dame Football Hanratty Huarte Joe John Notre Parseghian Pittsburgh Steelers Terry Theismann Tom
On Monday, July 21, 2008, the Milwaukee chapter of the University of Notre Dame Alumni Club hosted its 8th annual golf outing and dinner benefiting the Ara Parseghian Medical Research Foundation. The head Notre Dame football coach from 1964-74, Parseghian led his teams to the consensus national...
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